Hello from "Coordinating with Medical Facilities Central." Given my good response to the current treatment, surgery may now be an option. The bottom line is, I have been advised that surgery is the best option if I am a candidate. There is some question about how the loss of a lung will affect my quality of life, but if I have no life, who gives a s--t about quality.
Not knowing what would be available, last weekend I put out the call for assistance in getting an evaluation for surgery at Memorial Sloan Kettering (MSK) in New York and MD Anderson (MDA) in Houston. This week I also accepted an offer to try and schedule an evaluation at Emory. Much to my amazement, with the help of my remarkable friends and family, every institution has accepted me. I am currently scheduled to go to Emory on Tuesday 8/5 and MDA the following Tuesday. That is subject to change, as the MDA evaluation takes 7 to 10 days. I am working on condensing the MDA evaluation and/or switching the Emory and MDA appointments. In the meantime, Liz and I are furiously working on collecting medical records (a daunting task), I am still waiting for a consensus from my team of doctors here, and the surgeon at MSK is available on Wednesdays in August, so that has not been ruled out. Whew. Thank goodness for Liz and Neil, Doc Dave, Lee, Richard, and Regina.
I am sad to acknowledge there have been two other recent cancer diagnoses of women my age who live in Atlanta. One has lung cancer. My heart goes out to those stricken and their families, and ask that all my blog readers say an extra prayer for their recovery.
What can I do to thank all of my supporters who have helped get me to this point? You have nourished my body, my family, my spirit, and taken care of me in ways unimaginable a few shorts months ago. My goal is a full and complete recovery. There is no possible way that this could happen without each and every one of you.
Love to all
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9 comments:
I'm so excited to hear your a candidate for the surgery!! Go for it! Good luck at all the evaluations. What a blessing to have options!I wrote you more about my move and new singles life on personal email. Dont want to put your friends to sleep. Big hug!
Bridgette
Elyse,
Wow, as they say, you miss a day, you miss a lot.. what a busy 24 hours you have had. You know I am here to help do whatever, whenever, and am hoping for the best possible solution that there can be. My thoughts are with you as always....
With love,
Ann
The combination of Elyse and Liz....they will be able to move mountains (oh...and arrange a bunch of appointments at the top cancer centers in the US, not too shabby)
Neil
You've got a great team--of doctors, family, friends, medical records procurers, and supporters--and an incredible core strength of your own. You've got everything you need to make the right decision for you, get the job done, and get the heck on with your life.
As stressful as it can sometimes be, I know it's a comfort to be moving forward. Go girl!
xoxoxo
Amy
Ali - now you move into the defining later rounds where you really excel - strategy and strenght will no doubtly get you to achieve your mission statement.
We are all hear cheering, I consider myself to be the corner cut man - pulling out the vaseline aka jokes to soothe the wounds..
Love and Prayers ... Steve
Today's topic - office mottos since I have been living in my outplacement office going stircrazy..
A clean desk is the sign of a cluttered desk drawer...
How do I set a laser printer to stun?
I pretend to work, they pretend to pay me..
Who is General Failure and why is he reading my hard disk? ...
Tell me what you need and I will tell you how to get along without it...
Work harder.. people on welfare depend upon it...
If you ain't makin' waves, you ain't kickin' hard enough.
A person who smiles in the face of adversity .... probably has a scapegoat.
___________________________________
Allright here's your latenight summary.. not a bad week..
The McCain campaign released an ad that compared Barack Obama to Britney Spears and Paris Hilton. Today, the Obama campaign released an ad comparing McCain to Zsa Zsa Gabor and Bea Arthur.
McCain’s not backing down. He’s defending the commercial. He says, like Paris, Obama is all talk, no action. Has he seen her sex video?
There is no talk . . . all action.
Barack Obama told Tom Brokaw, the other day, what he’s looking for in a vice president is someone who would tell him when he’s wrong. Wouldn’t Hillary be the best candidate? She’s been telling him he’s been dead wrong since the beginning on this.
Signs Your Cat Is Too Fat
10. Instead of “meow,” says “moo”
9. Takes 3 days to lick himself
8. Always stuck in the cat door
7. Has nine lives and ten chins
6. He has had more heart attacks than Dick Cheney
5. Have to get special extra-large flea collars from “Big & Tall Feline”
4. Instead of yarn ball, plays with meatball
3. Only thing he’s curious about is when Domino’s stops delivering
2. When he goes outside, people say, “Can I get your autograph, Mr. Gore?”
1. Next month, he’s doing a full hour with Dr. Phil
There’s excitement in the air over the Olympics . . . also lead, arsenic, benzene . . .
A new campaign ad from John McCain unfavorably compares Barack Obama and Britney Spears. Reporters tried to contact McCain to get a response to this criticism, but they couldn’t get a hold of him. He was busy having his dinner on a TV tray watching “Jeopardy.”
They found a 44-pound cat walking around in New Jersey. Everyone is falling in love with him, and I’m thinking, “Here in the city, we have rats bigger than that.”
There’s already been trouble with the kitty, though. Earlier today, it tried to mate with that thing on Donald Trump’s head.
Officials at the Beijing Olympics have begun evaluating athletes to determine their gender. Trust me, there's nothing worse than hearing, "I guess that's technically a penis."
In other Olympic news, China is upset because somebody leaked a video of the rehearsal for the Olympics Opening Ceremony on the Internet. I don't want to give away too much, but it ends with the lighting of a torch.
A cow sold today for a million dollars the other day. I always thought you could buy a cow with just magic beans.
I’ve always wanted a farm, but I couldn’t have geese. Geese are very mean, they’re very pointless animals. They’re like feathery divorce lawyers. ( Sorry Elyse - Craig Ferguson's material not mine.. )
A lot of people camped out to see Mariah Carey on the show tonight, but to be fair, a lot were camped out because they lost their homes to Countrywide.
The Olympics start the Friday after next. For some reason, they’re having them in Beijing, and the government right now is very hard at work trying to cover up all the horrible things they do in that country every day.
It’s like when your mom comes to visit your dorm.
President Bush is on the hunt for a new home. He just found out he and Laura are going to have to move out of the White House in a few months. His massive plan of foreclosures and plummeting real estate prices finally paid off.
Elyse, it was a real pleasure chatting with you yesterday. I love your spirit! Love this blog...what a great idea.
After we hung up, I remembered an affirmation that I heard on a tape a friend gave me and it helped me get thru the rough days (remember these too shall pass). The affirmation goes like this: I tell my cancer these things:
Thank you for slowing my life down and giving me time to reflect on what is important. Thanks for time to buid even stronger relationships with my family and friends. (then the speaker paused and in a firm voice said : YOU CAN GO NOW!!! Even my kids got into it and said to my lung area many times, "YOU CAN GO NOW!"
I pray that your jouney will be as or more successful as mine.
Fondy,
Sandy
PS - Remember that when you are taking a nap, you are not just sleeping...HEALING IS IN PROGRESS!
You're back!!! Seemed like such a long time between blog entries. You know your peeps are anxious for news from MC Blogger. Medical Records, ah yes, my life's work. How much are they charging per page these days??? You should demand they be put on a CD. The ability to have options, choices, multiple resources and input is awesome(berg). Anyway, I'll keep it short and just remind you the Kayes are a phone call away. Keep on truckin' (yes, we're old). Love, L&S.
I've been out of touch for a few days (in Minnesota for an Olsen family wedding ...) and am heartened by this good news. There is light at the end of this bizarre tunnel, we can all see it.
xxoo
p.s., let me know when you do the MSK appointment, I will meet you in NYC.
Elyse,
If everything continues as we discussed this weekend, it means that it is time to wish you good luck tomorrow. Hope all goes well with your Emory appointment! We await your next update and send loads of positive energy your way in the meantime!
Hugs, Susan
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